This service provides specialist palliative care and dementia management advice to those caring for individuals who are identified as a risk of experiencing difficulties as they approach the end of life with dementia.
The Hospice understands that people with Dementia suffer disadvantage in accessing health care services, contributing to them experiencing less than optimal care during the end of life,. Education and support is given to informal and professional carers, who are currently involved in this care.
Patients are assessed in the location they are currently cared for, and recommendations are made. The assessment is followed up as the dementia progresses, so appropriate responses to changing symptoms can be made with the aim of alleviating any distress, as and when it occurs.
It is rare for patients to need the highly specialist In Patient services available at the Hospice, but usually special palliative care advice is given within the existing care setting. We know a change of setting can be particularly disruptive and distressing, so our service aims to improve symptom relief where patients are currently being cared for, if this is achievable.
The Hospice also provides additional education via the Tameside consortium and through collaboration the Tameside and Glossop Care Home end of life education facilitator.
Referrals can be made when individuals are experiencing adverse symptoms associated with their dementia, and the approach of the end of life. A formal diagnosis of dementia is not necessary, but significant cognitive impairment, as assessed by the referrer, and agreed by the specialist nurse will be the criteria.
We hold a Dementia Carers Support Café on the third Friday of every month, and past and present carers are welcome to attend. A specialist dementia nurse will be present, as will a trainee solicitor to help with any legal issues. Best of all, you can relax with people who understand what you are going through.
For more information on the Dementia Carers Support Café please download this leaflet.